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A longitudinal medical record is a type of medical record that contains information about a patient's health over time, typically spanning multiple encounters with healthcare providers. This includes information about a patient's medical history, diagnoses, treatments, and test results, as well as notes from various healthcare providers such as physicians, nurses, and specialists. The purpose is to provide a comprehensive and detailed picture of a patient's health status and healthcare history. This can be especially important for managing chronic conditions, as well as for coordinating care between multiple healthcare providers and settings.
Laws and regulations regarding medical records can vary by jurisdiction; however, medical records are generally stored securely and confidentially by healthcare providers or facilities. You have the right to access and may request a copy from your providers. However, it is important to note that medical providers like hospitals and pharmacies may sell patient data without the patient's explicit consent. This can happen when patient data is de-identified and sold to third-party companies for research or marketing purposes. While de-identified patient data does not contain personally identifiable information, it can still reveal sensitive medical information about the patient. It is crucial to be aware of this practice and understand your rights when it comes to using and disclosing your medical information. That being said, medical records may still be transferred between healthcare providers or facilities to ensure continuity of care. Still, patients have the right to request that their medical records not be shared for other purposes.
Pharma and biotech companies may use your medical records for a variety of purposes, such as:
Sharing your medical records with researchers can have several potential benefits:
HIPAA stands for Health Insurance Portability and Accountability Act, which is a federal law in the United States that was enacted in 1996. The law contains provisions that set national standards for protecting the privacy and security of individuals' personal health information, known as PHI (Protected Health Information). HIPAA establishes rules and regulations for healthcare providers, health plans, and other organizations that handle PHI to ensure that it is kept confidential and secure. It also gives individuals certain rights over their health information, such as the right to access, request changes to, and receive a copy of their own health records. HIPAA applies to all forms of PHI, whether it is in paper or electronic form.
The 21st Century Cures Act is a comprehensive law passed by the US Congress in 2016 with the aim of accelerating medical innovation and improving patient outcomes. The law includes provisions that encourage the use of real-world evidence and patient experiences to support the regulatory approval of new drugs and medical devices. It also increases funding for medical research, promotes the use of digital health technologies, and addresses issues related to mental health and substance abuse. The 21st Century Cures Act is seen as a major step forward in modernizing the US healthcare system and improving access to effective treatments for patients.
PHI stands for Protected Health Information, which is any information that can be used to identify an individual and relates to their physical or mental health, the provision of healthcare services to them, or payment for those services. PHI includes information such as a patient's name, address, date of birth, Social Security number, medical diagnosis, medical history, test results, and health insurance information. Under the Health Insurance Portability and Accountability Act (HIPAA) in the United States, healthcare providers, health plans, and other covered entities are required to protect the privacy and security of PHI and to only use or disclose it for authorized purposes. Patients have certain rights over their PHI, such as the right to access, request changes to, and receive a copy of their own health records.
Medibanx is a patient-centered platform that powers better research by aggregating longitudinal data for rare diseases and enabling patients to participate in clinical research actively.
Medibanx gets your consent to collect your medical records on your behalf, digitizes, and organizes your file in one dynamic timeline. We selectively partner with life science researchers in specific disease areas and allow you to contribute to that research. By consenting to share anonymously, Medibanx will compensate you for your contribution.
After you sign up and consent to Medibanx, we can aggregate your data on your behalf from sources such as Electronic Medical Records, Patient Reported Outcomes, Wearables (e.g. AppleWatch Data), Genetics Data, and Insurance Claims. Medibanx then organizes, tags, and labels the data to record your medical journey in one place. With your consent, Medibanx securely and anonymously shares analyzed records with pharmaceutical and biotechnology companies. The value of your analyzed records is passed from these companies and returned to you as compensation. We believe the patient is the rightful owner of their medical files and should be compensated for their contribution to medicine.
To get started, go to https://medibanx.com/sign-up and provide us with your information. We’ll then contact you to get your consent to gather your records on your behalf and give you access.
If you are a patient or a caregiver of any rare disease in the United States or Canada, welcome to Medibanx! You are eligible and can join us here: https://medibanx.com/sign-up
Yes. You can cancel at any time for any reason, and you may choose to delete your medical records from Medibanx’s database. To cancel your account, contact us at info@medibanx.com.
To obtain your medical records from your doctor, we require the last 4 digits of your social security number (SSN). Typically, doctor's offices use your date of birth and the last 4 digits of your SSN to authenticate your identity and verify that you have authorized us to access these records.
For more information, check out https://medibanx.com/privacy-policy and https://medibanx.com/terms-of-service.
Medibanx takes privacy very seriously. We’re HIPPA compliant and use end-to-end encryption. Learn more about our https://medibanx.com/privacy-policy and medibanx.com/terms-of-service.
When you add a new doctor or facility to your medical records, you will typically be asked to provide the doctor's name and specialty, the facility name, the location of the office or hospital, and the date when you were last seen there. Providing as much information as possible will make it easier for your healthcare provider to locate your records and ensure that they have a complete medical history for you.
However, even if you don't have all of this information, your healthcare provider can still usually track down your records using just the doctor's name and location. This is because many healthcare providers use electronic health records systems that allow them to search for patients by name, location, and other identifying information.
It's important to note that in some cases, healthcare providers may not be able to locate all of your records, especially if you have seen multiple providers or received care at different facilities. In these cases, your healthcare provider may need to reach out to you for more information, such as the name of additional providers or facilities you have visited.
In addition, it's worth noting that different healthcare providers may use different electronic health records systems, which can sometimes make it challenging to share information between providers. However, there are efforts underway to improve interoperability between different systems so that patients can more easily access and share their medical records with different providers.
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